Caleb came into this life having seizures shortly after delivery and spent the first 18 months of her life on Phenobarbital. She was taken off the medication shortly before turning 2 years old. Over the course of the next year and a half we noticed seizures when she was sick but were assured that was not uncommon. After moving to Maryland her father and I noticed her having a seizure while she slept. It was then that we finally found a doctor who did not dismiss our concerns.I made a blind phone call to Johns Hopkins for a second opinion and finally we started getting answers. Someone finally ordered an MRI and low and behold there were two significant atrophies in her frontal lobe. Now things started to make sense. This explained so many things. In addition to having epilepsy she also suffered from migraines and a speech and language delay. Otherwise you would never know anything was wrong with Caleb, especially after she started talking more. Caleb was beautiful with a good sense of humor and an early eye for fashion. I say that with humor because Caleb rarely matched or wore anything other than dresses. While all the other girls were listening to pop music our girl was listening to bands like The Sounds ( We thank our Maryland people for this) The Donnas, Avril Lavigne,and Fefe Dobson. She was simply her own person and refused to change that for anyone even at a young age. However, what I remember the most was how kind our beautiful girl was. She greeted you with a smile, a hug, and genuine excitement (unless you were her brother...). Her elementary school days were pretty seizure quiet and we had hoped she had out grown them,she even completely came off of medication. Unfortunately,that hope dissipated on the second day of sixth grade. Hormones. Wow,how hormones can be an evil and not so easily thing to control for someone with epilepsy. The next 4 years proved very challenging for our girl. I have never witnessed someone who handled her life so well at such a young age. Instead of shying away from life she did the opposite. Caleb made sure she wore shorts under her dresses because, " I'm not giving people two free shows" and comically nicknamed her seizures her,"drop and flops". She was the strongest person I have had the privilege of knowing. She made 4 separate week long EMU stays over the next four years with the hope of being approved for a frontal lobe brain resection. She just knew this would help and give her the life back she had always hoped and envisioned for herself. By this time she was head over heels for boys,majorly expensive fashion, lacrosse,anything ocean related, especially sharks, and all things Ravens related. So, after 4 long years Caleb finally got her wish and had her brain surgery in June of 2012. Sadly,things did not go as well as we had all hoped and prayed they would. I guess the best way this was described to us was with the use of a baseball analogy. We didn't hit a home run but we made it on base. It was helpful but left Caleb with other side affects we didn't anticipate. By tenth grade she was discouraged but still kept her faith. As her parents we were heart broken at watching our beautiful girl start to hide inside of herself and worry over everything. She struggled everyday with new fear and anxiety which did not help her seizures. We had another EMU stay and there was talk of pseudo seizure activity as well. It was all so confusing and overwhelming and frankly..unfair. She felt like a nuisance to her friends because she couldn't drive, she felt left out because she didn't want to bother anyone if she seized. However,she was blessed with wonderful friends who never made her feel badly and supported her through everything. When Caleb's senior year finally arrived she was both petrified and excited about her next  phase in life. Unfortunately, Caleb's senior year ended up with her on homebound because we could not figure our how to stop her seizures at school, where the most stress occurred. By the time graduation rolled around she felt great, had a plan for her future and was so excited about moving to Charlottesville. We had a great summer traveling many places, she started school in the fall and had just finished her phlebotomy certification. Caleb's ultimate goal was to work in the EMU at Johns Hopkins so she could help people living through what she had. Our girl never had the chance to make her dreams come true because she was called to Heaven in the very early hours on 1-11-16. She was happy, excited about her future and her seizures were far and few between and this point. I think what makes us angry the most is that our daughter's life was taken by something we had never heard of before. I try not to be angry about losing my daughter but it's a daily struggle. The world has lost a beautiful soul. I loved and continue to love you fiercely and with my whole heart. I'm sorry I didn't know as much as I thought I did.